During my speaking engagements I hear many stories about how Alzheimer’s has affected peoples’ lives. I’ll get to more of the stories of my adventures on the road but I’ll let you into my world a bit and relay how Alzheimer’s has affected my family.
My father, Al, is 91 years old and suffers Alzheimer’s. He is fit and farm strong and when he’s dressed up people say, “Al looks like he’s ready to start a corporation.”
My dad’s appearance is deceiving as he is in a well-preserved body by often adrift in a cloudy world of memory loss. His world resets every three seconds which means there’s no sense of a current timeline and days are often filled with repetitive questions and limited conversation.
It’s sometimes painful to watch relatives, even those aware of his condition, to ask things like “Do you remember me?” or “Do you remember when …?” No…. he doesn’t.
My family is blessed, as my father is a ‘happy Alzheimer’s.’ He’s pleasant, pretty much all the time. He’s easy going, has extremely good manners and I like hanging out with him.
On the bicycle tours I raise money for music and exercise programs at Cedar Community. All the money stays local. I’ve found my father responds well to music and a couple weeks ago I added rummage-sale therapy to my Dr. Steffes list of remedies.
My dad and I always used to go to sales together on Saturday morning. Baseball cards, fishing equipment, tools, bikes – we would be gone an entire morning hunting for bargains.
I found out a couple years ago he still likes it. Matter of fact, when I go pick him up he’s got his shoes and hat on and is normally waiting to go.
This is a good opportunity to reach my dad. He’s never going to be able to step into my era so I’ve got to work to drift back into his.
At the sales we gravitate to hardware, tools and farm equipment. “What’s this,” I ask holding up a carpentry thingamajig. “That’s a planer,” he said. My dad was a Mr. Fix It in his prime. “How about that,” I said pointing to something leather and clunky. “It’s a horse collar; you’d put it over the back of the horse’s neck……” And there he goes; it’s more words than we’ve heard in a week.
“Did you have horses when you were growing up,” I ask. “Well, yes. Matter of fact I’d have to get up in the morning, milk the cows, load the milk into the wagon and take it to the cheese factory in St. Cloud.”
I’ve heard the stories a million times. But now he’s in his element. It’s kind of amazing
really, because otherwise he says nothing.
A couple of things about the disease – my dad doesn’t initiate conversation and when we walk from sale to sale he follows about five paces behind. I’m told that’s normal for someone with Alzheimer’s. It’s a little disconcerting; I glance back to make sure he’s still with me. It’s our two-person parade, minus the waving. I figure, if this is as bad as it is right now – I’m lucky.
At each sale I hear the same comment “high prices.” It’s a hard thing to grasp, this 2015. Maybe my dad is the lucky one – stuck in his era of Happy Days, 15-cent a gallon gas, and when neighbors helped neighbors – because it’s what you did.
Today I found a 45 rpm of Elvis with The King on the sleeve. “How much change do you have in your pocket,” I asked. My dad pulled out 57 cents and handed it over. It was a good old-fashioned rummage, they took it – happy to make a sale.
We normally don’t buy much, but it’s quality time and gives my mom some freedom, even if only a couple hours.
After my small purchase, we stopped at a sale by Kewaskum’s famed Jules Dreher and then head home.
Getting out of the car my dad turned to me. The look in his eye is very distant. I ask if he was feeling OK and after somewhat of a pause he said, “You owe me 57 cents.”
I consider it a miracle. That was more than a half hour ago…. from a guy who can’t remember three seconds ago. Dr. Steffes believes this is a sign the rummage-sale therapy is working.
I know somebody’s in there…. it’s up to me to reach him.
I think I’ll keep my dad on the hook with that 57 cents, at least for a bit. Selfishly, maybe he’ll stay around a little while longer.
This year’s Amazing Ride for Alzheimer’s leaves June 22 for New Mexico. I’ll land in Albuquerque, pedal to Ship Rock and then spin home. I’m calling it vacation.
If you’d like to sponsor the tour go to imthebikewriter.blogspot.com