West Bend boy featured in Boston Globe

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In October, Washington County Insider ran a guest column by Becky Abbott regarding her 10-year-old son Aidan who had a rare disease called Ectodermal Dysplasia.


The disease affects his teeth and Becky wrote, “We need to find brave men and women who will advocate for children with rare disease who are often overlooked, due to the rareness of their condition or disease.”

It appears the Boston Globe answered that call.

The Beyond the Diagnosis exhibit by Rare Disease United Foundation is currently on display at Harvard and will later move to the National Institutes of Health.

There are portraits of children who have different rare diseases and are trying to raise awareness for rare diseases. Aidan goes to an elementary school and in Washington County and he was chosen to represent Ectodermal Dysplasias.

He was one of a few children who had their picture in the Boston Globe.

“We are just amazed our son is going to be seen by many and raising awareness for all families that suffer from rare disease,” said Becky.

“The artist who painted the picture of Aiden is from Pennsylvania and did the portrait off of a photo we sent her.”

The Boston Globe article can be found at statnews.com/2015/11/30/rare-disease-art/

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